I love PLM because it provides a single, comprehensive location where I can track everything from my meds to treatments, hospitalizations, and even how I’m feeling today. The charts feature offers a running history that I can review as needed with my medical team. Plus, the forums allow me to connect with other patients to ask questions, share ideas and encouragement, and offer feedback on a wide variety of pf-related issues.
A key component of PLM is data sharing between researchers and members. Researchers frequently send out requests to members to take part in questionnaires, interviews or surveys. And, I can give them access to my charted info for further research and analysis.
If you haven’t visited PatientsLikeMe.com, it’s well work a click. They have communities for a wide variety of diseases, illnesses and conditions — even “rarities” like pulmonary fibrosis.